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Care and Health Informatics (CHI) Overview

Poor integration of data sources, infrastructure and data scientists has impeded effective research and implementation in the North West Coast region. We will help to unlock this potential by bringing people and data together on infrastructure tailored to meet the needs of modern data usage.

To achieve this, the Care and Health Informatics team (CHI) works across the whole care and health data lifecycle.

Care and Health data lifecycle

This will mean different things for different projects, but may include:

  1. Understanding & engagement: We speak to patient facing staff and researchers to understand their research questions and identify where we can support ARC research with our expertise in software, tools or data.
  2. Extraction, mining, acquisition: We extract data from health records, generate datasets through techniques such as text mining and process local authority data. We also acquire additional datasets relevant to health from a variety of sources.
  3. Cleaning: We spend A LOT of time assessing data quality and preparing data for use in research. This could include e.g removing duplicate information, correcting any obvious errors, deciding what to do when large chunks of data are missing. We also may remove identifiable information or link to additional data sources.
  4. Analysis: We look for trends and associations in data.
  5. Visualisation: We generate visualisations of data to help find and summarise information from it. This has included maps and virtual reality.
  6. Insight and communication: Our outputs of our work feed into front line care, public communication and academic journals.

You can watch us talking about about this in more detail in a video from the last ARC FEST.

An integral part of all the work we do is around data governance. While it may be easy for us to imagine new ways of collecting. joining and analysing data, we must always be consider if we should do it. This is where our public advisors will help to guide us.

We are also developing training and knowledge exchange mechanisms to help skills development in the region.

We are not starting from scratch with CHI – we are building on the work from CLAHRC and Connected Health Cities programme which have both had an impact on the region already. As well as working with Northern Health Science Alliance, HDRUK, Liverpool Health Partners and others.

You can find out more about the projects we are involved in on the projects page and more about us on the team page. If you have have any enquiries about the work we do or you want to get involved then send us an email: chiquery@liverpool.ac.uk.

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    Work stream 1. Network and library of methodology for LHCRE data research (objectives 1,2,5,6)

We will advance robust plans with Partners and Public/Community Advisers to assemble the data sources, data scientists and implementation information specialists, CHI-Net; a critical mass of ARC expertise combined with Partners’ investments in shared LHS e-infrastructure. An LHP-led cooperative will publish a green paper on engagement of data providers for LHS implementation across NWC, shaping digital and applied health research futures; to be co-produced with the wider Northern Health Science Alliance (NHSA) HDRUK communities. Plans will cover cross-organisational scaling-up of data linkage/governance, shared e-infrastructure, data harmonisation, computational statistics/AI and clinical/public health informatics.

The CCGs, City Council and Region will co-invest in infrastructure and collaborations to leverage CHI-Net, facilitating evidence-based, equity-focused commissioning decisions, building on successful collaborations; widening across CLAHRC NWC, through ILRR which now includes over 6000 region-wide households in two survey waves, and EPSRC-funded secondments of data scientists to develop effective commissioning evaluation tools.

    Work stream 2. New data science capacity & capability (objectives 3,6,7)

We will transform NWC health data science through co-investment in new capacity, multi-disciplinary training (with Implementation and IPH Themes) and a co-produced public library of CHI-Net resources, reusable as business intelligence recipes/tools for Partners to implement using their data. A rotation scheme will place data scientists in Partner organisations to advance both skills-development and requirements-identification.

Reciprocally, practitioners will have internships in data science groups. Collaborative competitive grant applications and cross-disciplinary dissemination/citation of research findings will be important markers of success.

    Work stream 3. Informatics research for care equity and health equality (objectives 4,8,9)

We will drive inequalities-reducing informatics across the digital care quality innovation work of our Partners’ regional Clinical Informatics Advisory Group, and the IPH/EPHC/PCCC Themes. NWC informatics interventions (from policy-informing information systems, to clinical decision support systems, and AI for patient self-care) that can improve care equity and reduce health inequalities will be mainstreamed in policy and driven into practice. Planned initiatives, for example NHSA efforts to reduce unscheduled care among multimorbid patients, will have CHI-Net inputs that seed research into both practitioner and policy-maker behaviours using multi-media presentations of information on inequality of access, social support, patient digital literacy etc. Where data science perfects the accuracy of the information, the informatics research will maximise its actionability.
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CROSS CUTTING THEMES

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